Institute for Medical Education and Research, Madelyn Trupkin Herzfeld, IMER, imer, imier, Miami, Florida, Nursing CE's, Nursing contact hours, nursing education, continuing education, medical research and education, Oncology, Postgraduate credit, oncology nurses, nurses, symposia, symposium, online educational credit, Breast Cancer, Cancer, cancer, breast cancer, colorectal cancer, Colorectal Cancer, Targeting EGFR, EGFR Inhibitors, egfr inhibitors, head and neck cancer, Anti-VEGF, VEGF Inhibitors, vegf inhibitors, lung cancer, head cancer, CINV, cinv, Chemotherapy Induced Nausea & Vomiting, chemotherapy, nausea, vomiting, mucositis, cancer pain, chronic pain  
Institute for Medical Education and Research, Madelyn Trupkin Herzfeld, IMER, imer, imier, Miami, Florida, Nursing CE's, Nursing contact hours, nursing education, continuing education, medical research and education, Oncology, Postgraduate credit, oncolog
   
  QUALITY OF LIFE: CANCER PAIN

Educational Symposium during the ONS 30th Annual Congress

Thursday, April 28, 2005 11:00 – 11:50 am
Friday, April 29, 2005 12:50 – 1:40 pm
The Orange County Convention Center
Booth #1239

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Patrick Coyne, MSN

Introduction
The program is sponsored by IMER. I do not have the sheet that was supposed to tell me exactly what to say in front of me anymore, but having said that, it’s all approved. Everything is above board, and those are the things that you really need to know.

I’m Patrick Coyne. I am a clinical nurse specialist for the Thomas Palliative Care Unit at the Virginia Commonwealth University and my job is managing pain and palliation. That’s where I come from.

What I was asked to talk about today is how we are going to treat pain. In an hour, you’re not going to get a lot about pain and since we are running behind, I’m going to be talking faster than I would like to. There are things that should challenge your practice and that’s really what I’d like for you to walk out of here today and say how can I do a better job in my practice of pain management. How can I push my peers. How can I make things be better for those I care for and backup those that I take care of.

The first thing I think about when I get a consult and I do pain consults every day of my life is figure out what kind of pain is it I’m dealing with? Is it an acute pain or is it chronic pain.

What is Pain?
Acute pain, the easiest way to think about it is serves a purpose. It tells you something is wrong, 90% to 95% of patients who have acute pain will change vital signs, 5% wont. This is what drives nurses and doctors crazy. The pain is a 10 and their pulse is 72. They just don’t do what we expect to see. Most patients will change vital signs with the acute pain. This is something that’s really important for you to think about because if you have a cancer patient who is changing vital signs, something acute is happening and it’s telling something bad is happening. It’s serving that purpose.

Chronic Pain
Chronic pain on the other hand, it serves no purpose. Someone who has rheumatoid arthritis, they hurt every day. Somebody who has cancer pain, that’s constant, they hurt every day. It serves no purpose. Vital signs do not change. People who rely on vital signs are going to be at a loss.

Cancer Pain
Cancer pain can be acute, it can be chronic and that’s why cancer pain is different. It drives me crazy when I see people write they have chronic cancer pain. Cancer pain is a whole separate entity. It’s acute, it’s chronic, it’s ever changing. They have the ongoing pain from bone mets and they get a pathological fracture. They get a zoster infection. It’s going to be ever changing. Ten percent of cancer patients are going to have 7 or more sites of pain. You have to keep that in mind as you’re doing your pain assessment. We will talk about that because when they are rating their pain a 9, is that an impending cord compression or new infection or bowel obstruction. Is it related to the treatment?

In our cancer pain clinic 20% of the patients we see every week are disease-free cancer patients who have pain from their treatment, from the chemotherapy they got years ago, from the bone marrow transplant, from the radiation, from their surgery. As cancer becomes a chronic problem, we are seeing a lot of chronic pain from that and you have to bear that in mind.

Another Definition of Pain
Margo McCaffrey came up with this definition back in 1968. It’s a definition that’s taught basically in every nursing school around the country but it has one, what I would say, fatal flaw to it. What’s wrong with this definition? I’ll give you a hint. The patient has to be able to tell you they’re hurting. What about the patient whose language you do not speak, the patient who is intubated, the patient who is unresponsive, the two-year-old child, the patients with Alzheimer’s disease. How are you assessing their pain. Because you have to have a mechanism in place because these are populations are risk.

Physiological Effects of Pain
We know there is now a lot of research showing a lot of physiological effects to poor pain management. Wounds wont heal as quickly. Muscles break down quicker. Higher incidence of DVTs and pulmonary embolisms, higher incidence of cough suppression, atelectasis, pneumonia. If they have any renal problems, pain is going to make it worse because water and sodium retention occurs. Pain decreases GI function. If you are dealing with a physician who says I don’t want to give them opioids because I’m afraid they’ll get an ileus, there is great research now saying if you don’t manage their pain they are going to get an ileus. I’d rather be comfortable as I get my ileus than not be comfortable. Let’s think this one over.

Research in children and in the elderly demonstrated increased blood pressure, tachycardia, stroke. We are probably going to be able to demonstrate that in every population.

Psychologically we know when pain is not well managed. Anxiety increases, 20% to 25% of patients who have pain are clinically depressed. You are taking care of your population of patients and they have ongoing pain, you have to think about depression because 1 out of 4 have it. It’s that prominent.

Harvey Churkenoff from British Columbia did a research study in cancer patients who had pain and he did one question to figure out if they were depressed and it was 100% effective, which you could take and put in your practice today and that question was: are you depressed? A 100% effectiveness in assessing if the patient was depressed, not hard, real easy to do. You also have to think about sleep deprivation. Patients in pain get less REM cycle sleep so they are waking up more fatigued. Do they have a pain regimen that is waking up at 2:00 in the morning because it doesn’t last through the night. Those things you have to think about.

Is your patient actually thinking of ending their life because the pain or the symptoms from pain management are failing. You get so many symptoms from a lot of our interventions.

Immunological Effects of Pain
Immunologically, new research demonstrates that we have a decreased natural killer cell count and it infects the patient’s lymphocytes. This is really interesting research from our point-of-view in oncology because does this mean that poor pain management means faster metastatic spread because your immune system is more compromised because you haven’t treated pain. More data is to come but it is very interesting.

Barriers to Adequate Pain Control
We have a lot of barriers to getting pain relief done in our country. The biggest one is our attitudes and beliefs. As healthcare professionals, we carry baggage. Sometimes we don’t have enough education. We don’t know what to do. Margo McCaffrey quotes that to this day, the average physician gets one hour of pain management in this country. In our medical school we teach 14 hours, that means 13 others are teaching none if that’s the national average.

The average patient comes, over 80% comes to see a healthcare specialist with a chief complaint of pain. Most patients are coming to use because of pain. We are not even taught well enough on how to manage it. There are a lot of barriers in terms of new techniques using adjunct and coanalgesics, interventional strategies for pain management. Some laws in some states are putting prescription monitoring there, so physicians are scared to write prescriptions.

Insurance companies, my state will give you 100 pills a month. What if you need more than 100. That’s all you get. So there are barriers that your patients may basically inheriting and you may not know they are there. You also have to look if policies are stopping their pain management or if they can’t get to see a pain specialist because their HMO says no. All important questions.

Patients and Family Members
Patients and family what do they think. Most patients and family don’t think you can control cancer pain. They have a very low expectation because most patients have such horrible postoperative management when they get the big C their expectations of your ability to manage cancer are really low. They are very fearful they are going to get addicted and so you have to bring talks about addiction up front to get those fears out of the way.

I’ve had family members say, “you know I hid those pills, he was taking them every four hours. I knew he was addicted.” All very important things. If you’re not talking about that the first time that prescription is written, there is a problem. You have to talk about it. It has to be part of patient education. New research demonstrates if family is taught about pain management, patients will do better. It just came out yesterday. Teaching families is important.

Other things to look at are patient and family believes that it’s going to cause disorientation. It’s going to decrease their quality of life using opiates so you have to look at that. How many of you have been with a patient and they are telling you, no, the pain is a 6, 7 out of 10. A physician walks in, how are you doing, fine. You kind of sitting there, what just happened. But patients are really socialized not to complain. They want physicians to focus on curing disease and that’s really important that they need to understand they have to advocate. They have to be part of the team and they have to talk about their pain. They may not talk about their pain depending on who’s in the room. They may not want the family to know how much they are hurting. It may be a form of denial because if they say they have pain it means disease is progressive, things are failing.

Scope of the Problem
In cancer, depending on the study, between 14% and 100% of cancer patients do not get good relief. What’s going on in your facility. What is the biggest barrier to getting your patients well controlled? I’ll tell you what the research says. It’s assessment. People don’t ask enough. How are you asking? All research studies in cancer pain management show that if someone takes the time and asks about it regularly, patients do better. Somewhere between 20% and 30% better if someone asks about it regularly and acts on it.

Acute Pain Issues
Postoperatively, most of our patients before the diagnosis have this issue. They have surgery to get the diagnosis and have of these patients, 50%, don’t get their postoperative pain management. This may be what you’re inheriting when you’re dealing with patients as they get their disease. They get postoperative pain syndrome. We see it in cancer patients all the time. We see post thoracotomy pain syndrome. Phantom breast pain, post mastectomy, head and neck syndromes. What are you doing for those patients? Are you identifying it?

If they get traumatic neuromas, scar tissue forming after the surgery, they can have an acute pain that becomes a chronic pain. What psychological factors are involved? Are they dealing with depression, change in body image, the role within their family and community has it changed because of the pain or because of our treatment of it. Are you treating the symptoms aggressively, which is really vital because a lot of patients will stop taking their pain medications because the symptoms are so horrific, the constipation is so bad. The nausea is not treated aggressively. The sedation is intolerable.

I always say it’s really easy to get someone comfortable who is laying flat in bed but if it hurts too much to get out of bed it’s not much of a pain control regimen or if they are too sedated to get out of pain, it’s not much of a pain control regimen. Those are things you have to look at.

Populations at Risk for Inadequate Analgesia
In the United States, if you fall into these categories you will get less pain medications than anyone else. Looking around the audience, basically almost everyone here is at risk. If you are a woman, an older adult over 75, a minority, a child, someone who is poor, someone who is in a nursing home, someone whose language you do not speak, and someone who comes from a different socioeconomic, educational, or cultural background than you will get less pain medication.

The reasons for this are limited verbal communication. Are they able to communicate their pain. Who is advocating for them? One study looked at 120 children who had open chest surgery, had to break the sternum. Postoperatively, 21 got pain medications, 16 got Tylenol. That’s 100 kids who got nothing. You think moms at the bedside are saying, “give my kid morphine.” Mom is expecting everyone to do the right thing it just never happened. Are you doing the right thing? How are you managing your patient’s pain who cannot communicate to you, who cannot tell you they are in pain.

We know that one physician, one nurse will do something different than another. Somebody will give four morphine, the next will give six. We don’t do things the same. Sometimes we stigmatize our patients. It’s the famous, “he hits that call bell every three hours for pain medication.” That’s probably because it last three hours. If we were smart, we’d be giving it to them every three hours rather than making him call for it. There are a lot of problems that can occur in terms of emotional issues, physiological issues when pain is not well managed and we don’t have great research in pain medicine. We really need to do a lot more.

Cancer Pain
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Cancer Pain
Cancer Pain
  CANCER PAIN
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